7,000. The number of different rare diseases in the world.
1 in every 2000 people. The incidence when a disease is considered rare in Australia and Europe.
7% of the population has a rare disease.
1.4 million people live with a rare disease in Australia.
50% of all people affected by rare diseases are kids.
30% of kids with a rare disease won’t live past the age of five.
80% of rare diseases have a genetic component.
Only 5% of all rare diseases have a treatment.
Most rare diseases are life-threatening, painful, and cause great suffering.