The Nathan Project for Rare Diseases

Ziya’s Movement


Inspired by little Ziya Raghwani, Ziya’s movement is our family support program. Founded by Ziya’s mother, Preeti, Ziya’s movement aims to empower others and empower yourself.


Throughout Ziya’s journey, Preeti found a lack of counselling and bereavement services for families whose kids were diagnosed with rare diseases in palliative care. Preeti also discovered a lack of community for these families.

Preeti’s mission is to provide these services to our families, so that they feel less alone and empowered. For further information on how you can access these services, please contact us! Ziya is our little wonder woman!